Therapy at home helps toddler with genetic disorder thrive
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In Western Australia, two-year-old Blake Thomas has made developmental strides thanks to Ability WA’s In-Home Baby Intervention Service (IBIS).
Blake’s mother, Jenna Moriarty, a paediatric nurse, recognised early signs of Neurofibromatosis type 1 (NF1), a genetic condition also affecting her family, and sought support for her son’s delayed development. Traditional therapy required leaving home, which distressed Blake, so Ms. Moriarty turned to IBIS, a Telethon-funded program bringing therapy into the family’s home.
The IBIS team, including speech, physio, and occupational therapists, worked with Blake over ten months, building his skills and confidence within his safe environment. When he began the program at 16 months, Blake could sit but not crawl or talk. By July of this year, he was able to walk ten steps with assistance.
Therapists also introduced communication tools like digital language boards and AUSLAN signing, enabling Blake to sign words such as “more,” “finish,” and “eat.” A dietitian developed a nutrition plan to address Blake’s limited food range. As a result of this support, Blake now enjoys outings to parks and cafes and is preparing to participate in his mother’s wedding by walking her down the aisle.
The family will transition to support through the National Disability Insurance Scheme (NDIS), with IBIS providing a report to help establish ongoing care.
